Introduction
Traveling with chronic illnesses can be incredibly challenging, especially when unexpected diagnoses and persistent pain are involved. Caitlin's journey with chronic illness began 11 years ago at the age of 14, and she has since become well-versed in managing the complexities that come with it. Initially diagnosed with right acetabular hip dysplasia, Caitlin spent years advocating for her health until she finally received a diagnosis of Ehlers-Danlos syndrome, along with several other conditions.
Despite these challenges, Caitlin remains determined to enjoy her travels and has developed a set of strategies to make the experience more manageable. In this blog post, she shares her personal story and offers practical tips for fellow chronic illness warriors to help them navigate their own journeys.
The Beginning of My Journey
My diagnosis journey began 11 years ago when I was just 14 years old. One day, while dancing, I felt a gut-wrenching pain in my right hip. For a while, I complained about it but never pursued anything until the pain started taking control of my life. At the age of 15, I was diagnosed with right acetabular hip dysplasia. From that point on, I became an expert at masking my pain.
I consistently told doctors and specialists that something else was wrong and that the pain wasn’t normal. However, I was dismissed countless times and re-referred to the same physiotherapy program. After a decade of fighting, at 24, I finally received a diagnosis of Ehlers-Danlos syndrome. Since then, I have received over eight additional diagnoses.
Challenges of Traveling with Chronic Illness
Being disabled and chronically ill has made traveling much more challenging than it used to be. I was always a last-minute packer, but now, packing takes at least a week and numerous lists to ensure I have everything I need. Here are some tips I've found helpful for making travel more manageable:
Medication and Comfort Items
- Order Medications in Advance: Make sure to order any medications needed for your trip in advance. Inform the pharmacy that you are going away, and request blister packs for ease instead of having to fill multiple pill cases.
- Pack Comfort Items: Bring something that brings you comfort, such as your favorite blanket, a pillow, or a soft toy.
Essential Items to Pack
- Electrolytes and Antihistamines: Always have electrolytes and antihistamines on hand.
- Mini First Aid Kit and Sanitizer: Pack a mini first aid kit and sanitizer for emergencies.
- Heat Patches, Cooling Patches, KT Tape, and Braces: These items can help manage pain and discomfort during your travels.
- Compression Garments and Portable Fan: Bring compression garments and a portable fan to help with temperature regulation.
- Safe Foods and Snacks: Pack some safe foods and snacks that fit into your luggage.
Clothing and Organization
- Comfortable Clothing: Try on any clothing before packing it, and bring clothes that are comfortable, non-restrictive, and allow for layering to navigate temperature changes.
- Organize with Small Storage Bags: Use multiple small storage bags to keep everything organized. I use personalized zip bags, but you can also label them. Have one for medications, one for snacks and electrolytes, one labeled "medical equipment," and so on.
Traveling with chronic illness requires careful planning and organization, but it is possible to have enjoyable and memorable experiences. By following these tips, you can better navigate the challenges and focus on making the most of your trip.
To learn more about Caitlin's journey, follow her on Instagram.
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