Living with a disability is a journey filled with challenges—but also with strength, compassion, and identity. For Lily, what once felt like something to hide has become something to celebrate. From glowing canes to community storytelling, she’s learned to honor all the parts of herself—seen and unseen.
Keep reading to learn how Lily’s experience with chronic illness has shaped her view of the world and what she wants others to know.
Embracing Disability as a Beautiful Part of My Identity
I try to celebrate all the parts of me that come with having a disability instead of hiding them! One way I do that is by using mobility aids that make me feel confident and expressive. I love matching my canes to my outfits, picking ones with fun patterns or even ones that glow in the dark. Making them feel like me helps me embrace them instead of feeling like I need to shrink myself.
How Chronic Illness Changed the Way I See the World
Chronic illness has changed me in every way — it’s given me a deep sense of compassion and empathy that I didn’t have before. I now see others with disabilities through a much more understanding and gentle lens. It’s taught me that strength doesn’t always look the way we expect.
From Fear to Empowerment: Sharing My Story Online
When I first started my Instagram account to share more of my journey, I was terrified. I worried so much about how people would perceive me or if they’d judge me. Now, I feel proud to share my story — the highs and the lows. Speaking openly about chronic illness and disability has become something that empowers me and helps me connect with others in meaningful ways.
Redefining What “Disability” Means to Me
Years ago, if someone had asked me what disability meant, I probably would’ve pictured someone in a wheelchair. I didn’t yet understand the vast range of disabilities, especially invisible ones. Now I know that disability looks different for everyone, and every experience is valid—whether it’s visible or not.
Navigating the Mental Health Toll of Chronic Illness
Living with a disability has deeply impacted my mental health. I’ve faced depression, PTSD from severe medical trauma, and the ongoing emotional toll of navigating a life that’s constantly unpredictable. But it’s also made me more self-aware, resilient, and committed to prioritizing mental health as a vital part of healing.
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